Nebraska Strollathon benefits Rett Syndrome research

By Shaleeka Powell

 

GRAND ISLAND, Neb. — The nice weather was a warm welcome for hundreds of people from around the state rolling or strolling to support families affected by Rett Syndrome.

Saturday was the 5th annual Nebraska Strollathon at Westridge Middle School in Grand Island.

Organizers said the event is important, because it raises money for treatments and a cure for the disorder. It also helps raise awareness.

Rett Syndrome is a disorder that leads to severe impairments affecting the ability to walk, speak, breathe, or even eat.

“We currently have 34 families in Nebraska with daughters with Rett Syndrome,” Jacy Horst, the chair of Nebraska Rett Syndrome Strollathon, said. “This is a time for the state to get together as families to talk, visit, and share stories.”

Horst added it’s important to give the girls affected with the disorder a day that celebrates them.

“The girls with Rett Syndrome are beautiful people,” Horst said. “They understand what you say, but they might not be able to talk back when you talk with them.” “They also appreciate all of the support that they are given from the community, not just Grand Island, but from around the state,” Horst added.

The next Strollathon will be around this time next year and organizers said they hope to move it around the state.

 


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