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Getting Disability Benefits for Ehlers-Danlos Syndrome- Drug rehab center

If you have vascular or regular EDS with severe symptoms that prevent you from working, you may be able to get disability.

Ehlers-Danlos syndrome (EDS) is a group of genetic disorders that affect the connective tissues in your body, which serve to provide strength and elasticity to your body structure. Ehlers-Danlos can affect your skin, joints, and blood vessel walls; the syndrome is characterized by extremely flexible joints and very stretchy, fragile skin. Vascular Ehlers-Danlos syndrome is a severe form of the syndrome and affects the blood vessels in the body.

If you have EDS and are unable to work because of severe symptoms from it, you may be eligible for disability benefits, including Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI).

Symptoms of Ehlers-Danlos Syndrome

Those with Ehlers-Danlos syndrome generally suffer symptoms associated with their joints, due to increased flexibility. These symptoms can include:

  • joint dislocation
  • joint pain, and
  • double- jointedness.

Skin symptoms are also common, due to the increased stretchiness of the skin, and can include:

  • easily bruised or damaged skinned
  • poor wound healing, and
  • increased scarring.

Other symptoms caused by EDS due to the connective tissue impairments include:

  • back pain
  • flat feet
  • vision problems, and
  • fatty growths, generally around the knees or elbows.

Long-term effects of EDS can include:

  • chronic joint pain
  • early onset arthritis
  • failure of surgical wounds to heal properly
  • increased skin infections due to improper healing
  • premature rupture of membranes during pregnancy, and
  • rupturing of the eyeball.

Symptoms of Vascular Ehlers-Danlos

Vascular EDS has separate symptoms and long term-effects. Those with vascular EDS have distinct facial features, including thin noses, thin upper lips, small earlobes, and prominent eyes. Their skin is also noticeably thin; blood vessels will be very noticeable on pale people who suffer from vascular EDS. This type of EDS can weaken arteries throughout the body, especially the aorta (which is the largest artery in the heart) and arteries in the kidneys and spleen. The walls of hollow organs, such as the uterus and intestines, can also be weakened.

The long-term effects of vascular EDS can be extremely severe and can lead to sudden death from blood loss in extreme cases. Some of possible complications include:

  • rupturing of a major artery, such as the aorta
  • rupturing of arteries in the organs, and
  • rupturing of the intestines or uterus.

Qualifying for Disability Benefits for Ehlers-Danlos

There are two ways that individuals can qualify for disability benefits: meeting a disability listing or proving you are unable to work.

Meeting a Disability Listing

To meet a listing, you must show that you have an impairment listed in the Social Security “Blue Book” and that you meet all of the requirements noted in that listing.

For those with EDS, there is not a specific listing. Rather, you can meet a listing for an impairment you have due to the syndrome. Below are some of the possible listings that may be meet by EDS sufferers.

  • Listing 1.02 – Major dysfunction of a joint (due to any cause)
  • Listing 2.02 / 2.04 – Vision loss
  • Listing 4.10 – Aneurysm of the aorta
  • Listing 5.02 – Gastrointestinal bleeding requiring a blood transfusion, and
  • Listing 8.04 – Chronic infections of the skin.

Please note that while the listings for arthritic and connective tissue disease under Immune System (Listing 14.00) appear to be applicable to EDS, Social Security has clarified that they do not apply to EDS because EDS is a genetic disorder, not an immune system disorder.

Unable to Work

If your symptoms don’t fit into any of the above listings, you may be able to get disability benefits if your symptoms are so severe that they prevent you from being able to do most work activities. To receive disability benefits based on an inability to work, Social Security will look at your physical, mental, and sensory limitations. Those who have EDS often suffer from both physical and sensory impairments due to the syndrome.

Physical Abilities

Physical abilities include exertional activities, such as moving or lifting items and walking or standing for periods of time. Non-exertional physical activities include the ability to sit for periods of time or to complete office work such as typing or filing and will also be considered when determining physical abilities.

For those with EDS, joint problems can affect both gross motor skills (such as walking and using your arms) and fine motor skills (such as typing or doing other work with your hands), depending on what joints are affected. Chronic pain in the joints could also affect their ability to do physical work.

Sensory Abilities

Sensory abilities include your ability to function within various work environments and to adapt to situations. For example, vision loss can affect your ability to adapt to new environments, would limit the type of work that you could perform, and can limit the locations where you can work. Additionally, if open wounds are present, the environment in which you are able to work may be limited.

Social Security’s Decision

Social Security will develop a residual functional capacity (RFC) report on you that includes your physical and sensory limitations and will compare it to the requirements of your past job as well as other work to see if there is any work within your limitations. Social Security look at these factors plus your age, education level, and work history in determining if you are able to work. For more information on this analysis, see our section on how Social Security decides if you are unable to work.

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Low Carb Cream Cheese Fudge-Best weight loss program

This is one of my favorite low carb treats. I don’t like super sweet sweets and the cream cheese gives this just the right little bit of tang yet it’s sweet enough for me. You can add more sweetener to this also. I use about 1/2 cup because it’s enough for me. But taste it as you go and add more if you like it sweeter. Also you can add nuts if you like.

Low Carb Cream Cheese Fudge

Ingredients:
1 Stick Butter ( I use salted )
2 oz. Bakers Unsweetened Chocolate
1 Tablespoon Vanilla
1 8 oz. package Cream Cheese, softened
1/2 Cup Stevia  or any sweetener or your choice to taste
Instructions:
Place butter and chocolate in a small pan and melt oven low heat. When chocolate and butter is just melted add vanilla and sweetener and blend together.
Place cream cheese in a medium bowl and pour chocolate mixture over it.
With a hand mixer mix about 2 minutes.
Pour into a greased  pan. I use a 6 x 8 pan and I freeze it and cut into squares.
 Note : I keep fudge  stored in the freezer . Out of site, out of mind. too
This makes a great frosting for mim’s or low carb  cookies ect.  
makes 24 pieces at  0.3 carbs per piece.

WILL DICKEY/The Times-Union--04/30/09--Kerry Clark, professor of epidemiology and environmental health at the University of North Florida, holds a lone star tick, a species suspected of carrying Lyme Disease Thursday, April 30, 2009 in Jacksonville, Florida. (The Florida Times-Union, Will Dickey)

The Fatal Truth About Lyme Disease- Term life

You have heard, and will hear, it time and time again: “Lyme disease is cured with a few weeks of antibiotics.” If this is the case, why are hundreds of thousands –if not more- suffering for years on end from the disease? According to the CDC, they are not, because chronic Lyme disease does not exist:

“Approximately 10 to 20% of patients treated for Lyme disease with a recommended 2–4 week course of antibiotics will have lingering symptoms of fatigue, pain, or joint and muscle aches. In some cases, these can last for more than 6 months. Although often called “chronic Lyme disease,” this condition is properly known as “Post-treatment Lyme Disease Syndrome. [1]”

For people suffering from Chronic Lyme, this statement is infuriating because they feel they are being told they are crazy; and also because pain, fatigue, and joint/muscle aches are often the least of their worries. Much more serious health complications arise from Lyme, and it is important that the public is aware of these symptoms. When looking at the bigger picture, the infuriating part is just how dangerous this statement is. If left untreated, Lyme disease can and will be fatal. That is the sad and often ignored truth.

Furthermore, it is estimated that only one out of every ten cases of Lyme disease is actually reported and that numerous individuals are misdiagnosed. In 2010 alone, state health departments reported 22,561 confirmed cases of Lyme disease and 7,597 probable cases to the Centers for Disease Control and Prevention. The actual number is believed to be much higher than the yearly number of cases reported. One reason for this is due to the fact that reporting criteria varies from state to state; and most states take time to report only the minimum amount required. Still, the number of reported cases has increased 25-fold since national surveillance began in 1982 [4].

Of course it is three years later, but unfortunately 2010 is the most recent year researched. So if the number of reported Lyme cases was only continuing to increase at that time, and since there has been no evidence of a decrease in cases, it can only be assumed that the number of people with Lyme disease is appallingly higher at the present moment. There are so many angles to touch on this topic, so let’s start with the very basics because there are many, many people who do not so much as know what Lyme disease is, much less how you contract it.

 

What is Lyme disease?

  • According to ‘Wikipedia’, “Lyme disease, Lyme borreliosis is an infectious disease caused by at least three species of bacteria belonging to the genus Borrelia [2].”
  •  In lay terms, Lyme disease is an infection from a tick bite.
  • Eloquently put by ‘Tired of Lyme’, “the non-technical term is what can truly depict Lyme disease best.  It involves aspects ranging from every angle of the lives of those affected including physical, mental and social. [3]”

Initial Symptoms

  • Bulls-eye rash is a definite positive of Lyme disease. However, only 50% of people with Lyme disease recall having a bulls-eye rash. The rash can also appear in bruise form depending on a person’s pigmentation. For example, a bruise that is blue/black on the outside, with a lighter color circle in the middle is a clear indication of Lyme disease. If you get to the doctor while you still have the rash, you have a better shot of getting treated right away and not having to deal with Chronic Lyme disease. As I will discuss later, testing is not always accurate, so getting to the doctor when you notice a bulls-eye rash is imperative.
  • Fatigue
  • Flu-like symptoms
  • Muscle and joint aches/pain

The above symptoms describe the typical initial onset of Lyme disease. But what if you, or someone you know, miss the crucial time period in which those are the only symptoms? Unfortunately, there are over thirty other symptoms, each of which can mimic other diseases. This along with the fact that standard testing is only 30% percent accurate is why it is of the upmost importance for the public to be informed on, at the bare minimum, the basic truths behind Lyme disease.

Other Symptoms

  • Low grade fevers, “hot flashes” or chills
  • Night sweat
  • Sore throat
  • Swollen glands
  • Stiff neck
  • Migrating arthralgia’s, stiffness and frank arthritis
  • Myalgia
  • Chest pain and palpitations
  • Abdominal pain, nausea
  • Sleep disturbance
  • Poor concentration and memory loss
  • Irritability and mood swings
  • Depression
  • Back pain
  • Blurred vision and eye pain
  • Jaw pain
  • Testicular/pelvic pain
  • Tinnitus
  • Vertigo
  • Cranial nerve disturbance (facial numbness, pain, tingling, palsy or optic neuritis)
  • Head aches
  • Lightheadedness
  • Dizziness
  • Mysterious migrating symptoms that seem to come and go

Testing

A few blood tests are available for Lyme disease, but none are 100% accurate. The standard test is called an ELISA test. Oddly enough though, the ELISA is not based on the specific Lyme bacteria strain that is most beneficial for diagnostic testing. Therefor, the ELISA has a mere 30% accuracy rate. A negative reading can be meaningless, because false negatives are more common than not. A false positive is basically unheard of, so if you are lucky enough to test positive in the early stages it is a clear indication that you have the infection and need to start treatment right away. I use the term “lucky” here not because you are lucky if you have Lyme, but because you are lucky if you have Lyme and test positive early on. For many, it takes one pain-staking year after another before they are so much as introduced to the idea that they may possibly have Lyme disease. Another available, yet less administered, Lyme test is the Western Blot. While this test is slightly more reliable than the ELISA test, it is still faulty.

Doctors should not rely on test results alone to make a Lyme diagnosis because to date, a reliable test for the diagnosis of Lyme disease ceases to exist. Lyme doctors make a diagnosis based on a patient’s symptoms, medical history, and exposure to ticks –although that last one is not required, since ticks know no boundaries. Contrary to the popular statement that ticks are prevalent only in certain areas, the truth is you can walk outside your own front door and get bit.

If it all possible, it is best to get to a Lyme literate doctor if you believe you may have Lyme disease. This too also proves to be a difficult task, as many do not publicize that they specialize in Lyme disease due to legal reasons. To receive a list of Lyme literate practitioners closest to you.

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