Parents of five year Georgia Edwards would love their daughter, who can only communicate with her eyes, to meet the band before they take a break
The parents of a girl who suffers from a devastating neurological disorder have launched a campaign to make her dream of meeting super band One Direction come true.
Five-year-old Georgia Edwards from Johnstown, Wrexham, suffers from Rett Syndrome which has effectively locked the little girl in her own body.
This week fans were heartbroken to learn the four piece band are to take a “well-earned break” next year and go their separate ways, although they insisted it will not be a permanent split.
What helps Georgia through the toughest times is her biggest passion music and in particular One Direction.
Mum and dad, Katie and Gavin, are now launching a Facebook and Twitter campaign in the hope their brave daughter will get to meet her heroes.
The aim is to get her story shared to as many places as possible online in the hope it will get picked up by someone in the business who can help make Georgia’s dream happen and meet the boys Niall Horan, Liam Payne, Harry Styles and Louis Tomlinson, in person.
Katie said: “We are trying to get it shared to as many places as possible, around people and on to newspaper, TV and magazine sites in the hope that somebody can make this happen for Georgia. We just need that one person to see it.
“She loves One Direction, she loves listening to them.
“Georgia particularly likes Niall and when we show her a poster of the group she kisses him.
“When the announcement was made and we told her, Georgia’s eyes started to fill up, so we thought we’d give this a try for her.”
Georgia, who won people’s hearts with her beaming smile last year, has deteriorated dramatically over 12 months.
Rett Syndrome is a devastating neurological disorder, a single, random genetic mutation which strikes girls and boys between the age of six months and two years. Boys usually die within their first year.
But girls undergo a devastating regression which takes away their ability to walk, talk and use their hands as their body stops obeying signals from the brain.
The condition can also mean seizures, breathing problems, difficulty eating, tremors and heart complications.
Georgia has now been diagnosed with epilepsy and also has dystonia, which causes muscle spasms and contractions.
She has to use a wheelchair constantly, requires a feeding tube and her only form of communication is with her eyes.
Katie said: “Tweet it, share it. Whatever gets the word out then we would be eternally grateful.”
One Direction were originally a five piece, but Zayn Malik decided to leave the band.
If anyone wants to help share the message on social media and help Katie and Gavin’s campaign for Georgia, look for Georgie Pies One Direction Campaign on Facebook.